Rayne is now 14 years old.. Still...a true "girly girl"..
Rayne has the same dreams most little girls have.
Swimming, gymnastics, dancing..parties...
Until this year...Rayne was unable to go to school, she was home schooled due to her illness...
And unlike most kids, she has a very rare, debilitating systemic autoimmune disease... Behcet's-Vasculitis, and although she had to quit gymnastics, rock wall climbing and other strenuous activities, she hopes she will some day regain the ability to enjoy them again.
We had never heard of it either, ... but now we know it all to well.
It makes her mouth and skin bleed with painful sores, she's in pain - on a daily basis. On a good day, she tries do all the things she loves for - a couple of hours and then she fades into weakness and pain. She is learning to pick and choose her activities- because she knows it will take it's toll on her body afterwards.
Each new year research increases the opportunity to give Rayne a chance to fight this disease. But Insurance will not cover the all expenses for some of her the medications as well as the visits to the specialist who may be able to help her. Although there is no guarantee, it IS a chance she can get one step ahead of this disease and it's damaging effects.
There is no hope for a cure. But with your support we can give her a fighting chance for remission.
VASCULITIS (BEHCET'S) AWARENESS.
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